Over the past 4 years, we have seen Jo's PNH figures drop to the point that she will now start working her way off her blood thinner, Coumadin. The NIH tracks "PNH Clones" as a percentage of the total number of cells in her blood. They look at Red Blood Cells and Neutrophils, which are the most abundant type of white blood cell.
4 years ago, 43% of Jo's Red Blood Cells and 86% of her Neutrophils had the PNH problem. Last year, those numbers had dropped to 39% and 63%. This past May those numbers dropped again to 19% and 43%. The doctors at the NIH say that once you go below 50% blood thinners are not necessary.
1 comment:
SOSOSOSOSO happy for you and your family. I will always remember having the ultimate treat of dancing with you in the bar/lounge of the hotel at the Denver Dance about 7-9 years ago and you back lead a move I have used ever since. The best lessons are sometimes without words. Delivered in your trademark humble fashion. LUVYA!
Joe C from NYC
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