Jo and I just got home from Washington, D.C. Denver greeted us warmly with a May snowstorm to make the trip from the airport just a little more exciting that we would have wished for. We want to express a special "Thank You" to our wonderful neighbors Debbie & Thompson and their family (especially Christie) who once again took care of Anna for a few days. Fortunately Anna was sleeping when we picked her up, otherwise she probably wouldn't have wanted to leave!
When Jo had her initial consultation this morning, the word "normal" was used about 14 times. They are extremely happy with Jo's progress and they even referred to her as "the poster child for Aplastic Anemia".
After a sedated bone marrow biopsy, we went back up to the clinic to see Dr. Young and Dr. Sheinfeld. We had hoped they would tell us we could put off our next NIH visit for 2 years, but that is not the case...and oddly enough, that is actually good news.
Jo's PNH clone percentage has been decreasing each year and they expect this year's numbers to be even better - it'll take a couple of days for those tests to be completed and the results to be added to Jo's file. Dr. Young wants Jo to come back next year because he thinks there is a reasonable chance that her PNH clone will decrease enough that she may eventually be able to stop taking Coumadin. After we get this year's numbers, I'll explain the PNH measurements in more detail.
