I know I have been slacking with my updates, but things are plodding along kind of slow. We are trying to work our way into a clinical trial going on right now at the NIH. We have been working with all of our various hospitals to get as much data out to the NIH so that they can officially "accept" Jo into their clinical trial.
The NIH will be accepting new patients every Monday until they get enough patients to fulfill the goals of their study. We found out today that we cannot get started on the 30th like we had hoped, so it is looking like we will head out to Maryland sometime in February. Due to the doctors having other commitments, they are only accepting new patients on 3 of the 4 Mondays in February.
If you would like to read about the NIH's clinical trial, please visit the following link on the NIH web site:
http://www.clinicaltrial.gov/ct/show/NCT00260689?order=10.com
Monday, January 23, 2006
Tuesday, January 10, 2006
Bone Marrow Results and a Firm Moving Date
Jo's bone marrow biopsy results are back and the news is a bit confusing. One of the tests indicates that the cellularity of her bone marrow is at 25% of normal, compared to earlier test that showed 5% of normal. That sounds like great news, right? However, there are two other tests that showed 5% and "suboptimal" respectively. Then there is Dr. Anderlini in Houston who warned us not to get too excited about an increase in the cellularity since Jo's blood counts are still no where close to what they should be.
On the other hand, there is Dr. Alvarez here in Denver. He thinks that these results are a very good sign and he is greatly encouraged. The one thing that everyone agrees on is that it is time to start some form of treatment.
We are trying to schedule one more trip to the NIH - maybe next week. We know Dr. Sloand wants to see us out there, but getting past the scheduling pit bulls is a bit of challenge. They just want to make sure that Dr. Sloand has an opportunity to see all of the data before getting us to commit to a trip to Maryland.
We will be moving to our new house (sans stairs) here in Denver on January 28th. Please email me at TimSzymanski@comcast.net if you are able to help us with the "Extreme Makeover - Moving Edition". Our goal is to have everything moved and put away in 1 day. Our motive is to eliminate any temptation for Jo to lift anything that she shouldn't be lifting and thus endangering her fragile hips.
On the other hand, there is Dr. Alvarez here in Denver. He thinks that these results are a very good sign and he is greatly encouraged. The one thing that everyone agrees on is that it is time to start some form of treatment.
We are trying to schedule one more trip to the NIH - maybe next week. We know Dr. Sloand wants to see us out there, but getting past the scheduling pit bulls is a bit of challenge. They just want to make sure that Dr. Sloand has an opportunity to see all of the data before getting us to commit to a trip to Maryland.
We will be moving to our new house (sans stairs) here in Denver on January 28th. Please email me at TimSzymanski@comcast.net if you are able to help us with the "Extreme Makeover - Moving Edition". Our goal is to have everything moved and put away in 1 day. Our motive is to eliminate any temptation for Jo to lift anything that she shouldn't be lifting and thus endangering her fragile hips.
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